The Chronic Fatigue doctor 3   Recently updated!


Today we went to the Hunter Hopkins Clinic, which specializes in Chronic Fatigue Syndrome. It was a very long appointment and we are both exhausted from it. The appointment started at 9AM and we didn’t leave until 1PM! So this will be a short summary!

We started the appointment with a cognition test, and that nearly wiped Brad out! Then Dr. Black came in and she was very nice. We talked with her for about two hours, telling her Brad’s extensive medical history. After talking, she started a physical exam on Brad. After listening to his breathing etc, she started assessing his muscles. She had him lift up his arms and press upward while she pressed downward on them. He was able to do it the first time. She did a few other things, then had him do the arm thing again, and then a third time.

Well this was entirely too much for Brad’s body! Each time he lifted his arms, he had more and more spasms, and by the end of the third time, he couldn’t talk, was spasming all over, and was having trouble breathing. Thank goodness she decided to stop the physical exam there! Due to Brad’s response to the physical exam, she decided not to give him the tilt table test or exercise test, for which we were very grateful!

She told us that Brad meets the criteria for both Chronic Fatigue Syndrome and a condition called Chronic Inflammatory Response Syndrome, which further lab testing might help confirm. She is quite hopeful that he can improve, which was great to hear. She wants him to start on some supplements to help him detoxify and to help the muscle spasms. Here are the supplements she wants him on:

balance oil
phosphatidylcholine liquid
NAC
probiotic that includes saccromyces boulardii
magnesium citrate, glycinate or other chelated magnesium
topical magnesium (to stop spasms when they are occurring)
progesterone cream (to prevent spasms)

At the end of the appointment, the very nice nurse named Mimi took about 15 vials of blood for various testing. Poor Brad, he hates needles! This was really tough for him. We have a follow up appointment via phone next month to discuss his test results.

When we got home, I fell asleep almost right away! We were exhausted! When we woke up, we called Brad’s parents. Brad’s mom told us that kombucha has the probiotic yeast in it that the doctor recommended, so Brad is going to start drinking kombucha, too! I already drink it every day. Kombucha and fermented foods (which also have the right probiotic) have much higher quality probiotics than anything you can buy in the store, so I am really excited about that and Brad’s mom is too.

Brad’s mom is also going to give us some of her magnesium pills so that Brad can start them right away while we are on our trip! I am really really hoping that we start to see some improvements quickly.

And now I must rest some more, because I have to facilitate NAMI tonight. What was I thinking!

I got a pic of Brad and a pic of Hestia during the appointment with my cell phone, so it’s not of the usual quality. Enjoy anyway!

A bearded man reclines in a power wheelchair, and looks extremely tired.  He has on brown pants, a tan shirt, a green blazer, a purple plaid tie, and a brown newsboy cap.
A bearded man reclines in a power wheelchair, and looks extremely tired. He has on brown pants, a tan shirt, a green blazer, a purple plaid tie, and a brown newsboy cap.
A small black and white dog with googley eyes sits on a lap and looks up at the camera.  She is wearing a purple mesh service dog vest, and you can see Brad's feet and bottom of his wheelchair in the background.
A small black and white dog with googley eyes sits on a lap and looks up at the camera. She is wearing a purple mesh service dog vest, and you can see Brad’s feet and bottom of his wheelchair in the background.

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